Saturday, April 22, 2017

Dr Goldberg

I haven't posted in a while because we have been at a standstill.  But don't worry, I haven't given up!  I know some may think of me as a crazy Mom, but when you just know there is something out there to help your son, well... you'll do anything!  I just can't give up on him and we are given that Mother's Intuition for a reason, so I will follow that as long as it tells me to.  So here is what we are onto now:

I have been watching this set of Triplets(according to their Moms posting on the Stem Cell Group I am on) about how this Dr Goldberg has done wonders for them.  The Mom says that they did not talk until they were 4 and had been on his protocol for a bit before they started, and are now 7.  She did stem cells once after starting Dr Goldbergs protocol but she says Dr Goldbergs treatment did the most for her sons treatment.  One of them she says is completely recovered and the other two are about 70%, so I finally decided to give it a go.  Mainly because he does a SPECT Scan which would show in depth what kind of damage that barstool could have actually done on Dylan's brain.  We had the Spect Scan on Monday April 16th and met with Dr Goldberg on Thursday April 20th to give them time to read the results.  We had prepared the scan group of how strong Dylan was and their professionalism and preparedness showed us other wise.  That was the smoothest procedure ever and Dylan didn't even put up a fight!  We were there the whole time while they did the procedure and I have to be honest, it was a bit nerve wracking!  At one point that anesthesiologist seemed a bit concerned about something and they weren't finding the solution quick enough for her liking, but she was holding Dylan's head back the entire time and listening to his vitals so I knew it would be ok, but as a parent, it is better to not see that, ha ha.  This procedure took about an hour and a half and then we were done until Thursday.  They were seriously amazing and I knew my little boys safety was in their best interest and they would take great care of him!


Thursday we met with Dr Goldberg to go over the results.  He is an older man and very educated.  He is actually a pediatrician but when his wife got sick and no one could find answers he started looking into different causes and found some connections to Neuro Immune Dysfunction, which he believes is what most of the people that are labeled with "autism" have.  From my understanding and maybe I am wrong, but what I got out of Dylan's scan results is that the barstool some how triggered his brain to shut off and protect itself from this virus type thing(a herpes virus) somehow.  He finds it hard to believe it was the one blow that did it, but possible.  He did mention something about ADHD possibly, and I said oh I am sure he had that, but that was Dylan and nothing I was concerned about.  Other than that we can not think of any signs before the barstool.  Anyway, his brain has been shut off at the temporal lobes and is still getting connections in the cerebellum(lower brain) but not seeing any activity in the frontal lobe(which if I remember correctly is big with speech, or the lack of in our case).




We are supposed to cut out dairy, limit sugar and get lots of protein in him.  Wish us luck, mainly myself because I want to see if cutting out dairy can help us all. So we are in this journey together as a family!
He believes the scan was sufficient evidence to show the viral activity but we also needed to do some lab work when we got back home.  I talk to him on the 16th of May to go over these results.  We have started him on Valtrex to go after this virus and from his book he could add on an antifungal and a low dose of an ssri such as prozac.  The triplets I have been watching have been on the procedure for 3 years so it is a long term thing but if it helps Dylan and can't hurt him then I am all for trying!  According to him it is a good thing we didn't put Dylan on all the medication/supplements the Reno Dr prescribed, especially the oxygen because that could have made things worse, but who knows, right?  He went as far to say that we should demand our money back even!  So this is where we are on the treatment of Dylan.  He told us that I am doing good with my Mothers intuition and he said he is a successful person and won't give up, so here is to hoping this will help our little guy!!