Phone Consult #1

We started Dylan on Valtrex a couple weeks ago and things have been going pretty well.  He has seemed a little bit calmer and attends to activities at school for longer(5-10 minutes) periods of time seems to be a constant thing we are being told!  We didn't see any die off affect like Dr Goldberg says could happen, so we will hope that is a good thing!  We had our first over the phone appointment with Dr Goldberg the other day to discuss his lab work and our next step of treatment.  We are going to start him on a very low dose of Lexapro on Sunday(like 1/8 of a 10 mg pill, low. Then the following week we will up it to 1/4 a pill.) I am a little nervous because we could see a regression or something and I just don't know how it will affect him.  The pharmacist said it could also make him tired or make things worse(I think she was thinking more along the lines of depression not knowing what Dylan is using this for, so I just have to really watch his mood and guess how he is feeling since he doesn't talk.)  This medication in Dylan's case should help to activate his temporal lobes and get the whole brain begin to function correctly. I am hoping since it is a very low dose that it will not affect him to negatively, but then again it could cause a huge surge in the brain that hasn't been working and be a bit overwhelming, so we are a team and going to help him through the best we can.

He wants us to really focus on a 3-4 year old level teaching and work on shapes, colors, numbers, etc. by pointing out those either in a learning setting or just when we are out and about and have him point things out  for us.  As far as speech goes, we really need to focus on Early Oral Motor Skills because that is where he is going to relearn everything that has been locked away and needs to be retaught to bring it out!  We also need to give him pep talks and help him to really understand that it is not him that is at fault for  having not been able to function properly but the illness that has consumed his body for the past 3 years.  Dr Goldberg believes these kids are really down on themselves and blame themselves for what has happened.  This goes along with what we did when we did the Energy Work, which a few things with this treatment really goes along with what we learned there as well.  I am excited and a bit nervous to see where we are in a week or two with this medication!  He has been in a pretty good place and been pretty happy and content for the most part, that I hope we don't have a huge downhill slide, but if I can get my little boy talking I will do whatever I have to!  He deserves the best in life and I am not just going to let it fly by!  I will keep pushing with him and we will help him!  I have never felt that this was Dylan so I may be crazy but we are on a mission and we will find the answer!

Here is a few of the labs we went over, but it is just from my chicken scratch and I don't necessarily know what they all mean but maybe one day I will read more into it and understand more!

CD4 is good
CD8 is good
NK Cells not bad

Allergies 2%
Basal Bills 1%(grain based) 0% normal
Chemistry and Imoglubins were fine
Another test, but I didn't catch the name indicates No Celiac so that is why the Paleo type alternative flours wouldn't help him

Herpes 1 (Cold Sore) High
Thyroid Normal
HHV6 Elevated 6.23
Herpes IGM- Positive should never be in the body
ANA- Positive Very High ( This is the Anti Nuclear Antibody where your body is basically making mistakes and attacks the immune system, i think)  This is a main problem from my understanding

They are sending me the Food Screen results but the way he sounded is that Dylan's look very good, kind of like Dr Joe said that food is not his problem, so that goes along with that as well.  He did say to make sure and stay away from Kidney Beans!  We still need to watch what he eats and stick to the diet to give his immune system the proper support and rid it of anything that could attack it so that the medicine can do it's job and attack and get rid of the virus.  We will talk to Dr Goldberg again at the end of June and go from there!  Wish us luck!