Day 4 and 5

Each visit got a little easier and he started to interact with the staff.  He gave them 5 and would laugh when they took his temperature(under the arm) as if it was tickling him.  He even climbed up in the chair on his own.  When the nurse came out to get him one of the days, he went up to her and grabbed her stethoscope and put it on his heart as if saying, "Here I will just do this and then you don't have to worry about it."

He always knew though when it was the final grab of the hand to find the vein and that is when he started putting up a fight.  However, the fighting was no where near what it was last time.  Lori held him and I held his legs, while 2 Drs. and a nurse focused on the arm where they were doing the infusions.

His labs came back great!  They are now running a couple different tests that they did not do last time.  Dr Barnett thinks they must have started just after we were there because it is standard now.  I wish they would have ran them because 2 of them are ones they typically see in Autistic patients, but Dylan's came back negative or good.  One being the gut inflammation, he does not have any!  Very good thing, but who knows if he had it prior to the first stem cell treatment or if Dylan was ever one of the typical gut kids.  If he was then that has improved and maybe the cells will work in another area this time!  Everything looked great except he is a little low on Iron, which we know is from the way he eats and he was a little dehydrated.  She said most patients are because they have just done lots of traveling so they don't really worry about that one too bad.  So we have some improvements from last time but I just wish we knew how is gut was to begin with!

We haven't seen much change in him however, one of the days as we were on our way to the pool, Lori asked if he wanted to go swimming and we swear he answered with a quick, "Yeah" and then she said something else about swimming and once again we heard the quick, "yeah.  Friday we saw some rain that we had been told we would see all week, but we were in the hotel room so it didn't really matter to us.  I am just glad I didn't go out and buy rain boots like I had thought about buying, ha ha.

Dr Barnett and Dylan

Javier and Dylan